Thursday, June 26, 2014

A quick update, including the name we choose for baby boy!

Holy moly, the last couple months have been crazy busy for our family.  Samantha finished up her kindergarten year, and with that came a field day at school and her kindergarten picnic.  I missed out on a lot of school activities this winter and spring because I was on my "death bed" and I am just so thankful that I had the energy to partake in her last days of kindergarten.  It was a blast seeing her interact with her classmates and teachers.  I must say I just love this school.  Everyone from the lunch and recess duties to her teacher to her principal are just amazing people.  You can tell they love and care for the kids.  Watching Samantha grow and learn this school year has just blown my mind.  The little stinker, can read beyond her grade level (yes, I'm bragging) and I have heard her read verses out of her Bible (her new favorite thing to do) and that isn't a "My first" or BOB book!  Super impressed with my little girl.  And relieved too.  I struggled with reading A LOT, and I did not want to see Samantha go through that.  Now we can just enjoy the dog days of summer!

And we most certainly have already enjoyed our summer vacation.  We started it off with a camping trip of epic proportion.  Five families, 10 adults and 15 children!  It was a blast.  Our children will most certainly remember this forever.  They had so much fun hiking around the woods close to the campsites, making smores, and just being kids.  I can't wait to go camping again.

We also spent 4 days at Flathead Lake playing with family and visiting friends, not to mention we got celebrate my best friends wedding!  And just today me and the kids came home from a trip to Billings to see my dad.  I can't say it was the most relaxing time, because William decided to act like a little terror the entire time.  This made for a very cranky momma.  And it was pure torture being at the winery for 2 full days unable to drink.  But, it was still good to see my dad and despite the fits, the kids had a great time and were reluctant to leave this morning.

So now we rest, for a bit.

Master William, has started physical therapy again, which is annoying, but needed.  He has not outgrown his hypotonia like many of the doctors thought.  When he was just 13 months old a Geneticist from Helena gave him the diagnosis of congenital benign hypotonia.  He figured that it might be caused by, get ready for this, an autosomal recessive cytochrome oxidase deficiency.  But to rule that out or discover it, a muscle biopsy would be needed.  At that time we ruled out the biopsy because we were hoping his hypotonia would normalize by age 2 or 3.  Well, he's almost 4 and still exhibits low muscle tone.  In January of 2013, we were given the okay to stop PT since at the time he was making a lot of progress, but in January of this year we decided to visit his PT for an evaluation.  Just to check up.  His PT was concerned that he hadn't made much progress in the year since we left.  Which we totally agree with.  So now we start the process of seeing specialists once again.  This time I'm thinking we need to do the muscle biopsy.  To me it seems like it would give us more answers than even another MRI or CAT scan.  Don't get me wrong, he is a very capable boy and he already shows a love and talent of all things sports related.  But as parents we'll do everything possible to help our little boy.

Okay, now that I made you read all that, I will finally tell you the name we chose for our little boy!  Some of you may already know, but thanks for not spilling the beans on Facebook. Okay, drum roll please.....

Coming this September, Carter Owen!

It took us awhile to find a name we both really liked.  For a while we really like Bradley, but the more we said the name out loud the less appealing it became.  We briefly thought about Hudson, Kendrick, David, Miles, Ryland, Jonah...just to name a few, but we finally settled on Carter.  And we just love the name.  I tried to find names by looking up meanings, but nothing popped out.  So unfortunately Carter's name means "one who uses a cart." Who knows maybe he'll own a famous little hotdog cart someday.  Let's hope not.  :)  Thanks for reading.